Team Tay : Nurses at Akron Childrens






Akron Childrens had a great team of nurses in the PICU unit. There was one who I couldnt stand and shes not in any of the photos.
Thank you all that too such great care of my daughter.

Team Tay Update: Dr Kidney

Yesterday,Taylor had her 1st apt with Dr Kidney.
We had labs to do before noon,and apt was at 2.
We showed Tay around the hospital,this was her first time seeing it as a visitor and not a patient. What happens?? Tays sugar drops to 81. She got real pale,I noticed that right away,she always says she feels fine..once her sugar comes up..pink color comes back into her cheeks.
I cant let her eat the hospital food,dont know the carb count in their food,so we packed lunches :)
Dr Kidney said we can stop the tums ,her calicum level has improved. The only thing that showed up on the blood that is a huge concern still is the kidneys. Tay has to drink 2 to 3 liters a day..make sure she keeps up with her carb and insulin at each meal,and her Lantus injection at bedtime.
This Monday coming,we have to be at Akron Childrens at 7am for a 4 hour long visit...meeting all the docs again,Some daid they met me in the PICU unit when we were there,I dont even remember meeting most of them and told them this,the docs said not to worry about it,we had a lot of, stress,and worries about Tay pulling through.
So,hopefully once her sugar stables..we can go back to Planet Fitness and work on her driving classes again.

Living With The Unknow : Diabetes




My 16 yr old daughter is now a confirmed diabetic,we were tested a few years ago and was negative.
This is our story :
In January 2017,we joined Planet Fitness,worked out every day. Taylor started to weight and lost 10lbs. We worked out on a Friday,she said her mouth was dry,we thought she didnt have enough water from our workout. Went to Planet Fitness the next day,no problems. Sunday came,Tay thought she was coming down with the

stomach bug since her twins sisters just had the bug.

That Wednesday,Tay asked to go to the ER,we went to see what was taking her so long to get ready,our nightmare started right then ans there. Taylor was half on the bed,half on the floor unresponsive,eyes rolled in the back of head,heavy labored breathing..we yelled and nothing. I call 911
I rode in the squad with Taylor to our local hospital. Er doc tells me,she in diabetic dka..english please!!! Diaberit coma and shes in bad shape. They couldnt treat my daughter at the hospital,she's a minor we need to get to Akron Children's Hospital,a 45 minute drive. The local hospital got a squad to come get Tay.
We arrive at Akron Childrens around 11am in PICU Tays unresponsive,labored breathing on oxygen. We had a nurse on 12 hr shift with us in the room,never left us. We never knew the signs of diabetes,nor that Taylor had it.
Around 2am my first night,doc comes in about every 15 mins reallt worried,shes not showing signs of improving,she was on 8 ivs,even ivs going into her hand,and neck.Insulin drip was also going..
2 days of not knowing if I was going to lose my daughter. Kidneys were in bad shap,thyroid,panceras all shut down and swelling on the brain.
Friday,signs of improvement..waking up but not the Tay we know. The swelling on her brain was making her words slurred and couldnt answer simple questions.
We would end up spending the next 6 and ahalf days in the PICU unit. We moved 5 times on that floor!! Our 6th and final move was to the 6th floor with kids closer in Tays age.
We now have to follow a strict diet,which isnt too bad. Insulin has been in the good before meals so no corrector is needed.
These are the photos of our journey at Akron Children's.
We have a long road ahead of us,but at least Tay is alive !!!